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Old 03-01-2012, 05:03 PM   #3
NanaJoni
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Join Date: May 2010
Location: Elizabethton, TN
Posts: 418
Re: mom wants to quit

KG - Karen's suggestion for counseling and some wellness support is a very good idea for your mom. In addition and related to her physical side effects, especially the diarrhea, it's something I've been dealing with for the last year and a half, even after stopping Herceptin. I finally was referred to a gastroenterologist who put me on a slow releasing steroid called Entocort (generic is budosenide). It works in the lower intestines and is used for many gastro problems including Crohn's. It's very expensive but my ins does help some - combined with lomotil on my worst days and some dietary adjustments, it controls things well. Without I'm constantly subject to embarassing and debilitating diarrhea. Before we got a handle on this, my mental and emotional status was very low. She is blessed to have a caring daughter like you. Keep trying - wishing you some better times.
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Joni -64 yrs old -
3/01/10: found lump in rt.breast
3/12/10: mammogram/ultrasnd/biopsy-invasive bc & DCIS; 2 tumors (2cm er-/pr-/HER2-& 1.8 cm er-/pr-/HER2+); grade 3;poorly differentiated
3/24/10:sent.node biopsy clear
3/31/10:bi-lateral mx.;atypical ductal hyperplasia-lft side
4/21/10:wound revision-infection/scarring 4/28/10:seromas both sides
5/21/10:port installed,TCH chemo (6 x 3 wks); Herc,-1yr; 33 rad tx after chemo
07/2010: port not working-2nd port didnt'work;3rd port opposite side.
07/2010: 2 weeks after 3rd port surgery, threw 3 pulm. emboli-IVC filter installed; warfarin
08/2010: hospitalizations w/3 of chemos; decision to stop after 4th-on to radiation in Oct 2010;Herc cont.
12/03/2010 - finished 33 rads Hooray!! cont. Herc. every 3 wks
4/2011 - pneumonia ??? Nope-radiation pneumonitis. No more Herc.
5/2011 - NED!!! port out.
8/2011 - clean PET & CT scans.Still NED
7/2012 - Still NED/very blessed.
2/2013 - 6 mos checkup-all clear. CA2729 down frm 13 to 11.
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