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Re: tdm1 rash
Some sites , especially EAPs , have not used t dm-1 long. Fairfax , Va. and Farber , Sloan , have been using t dm-1 for some yrs now, and have seen these red rashes before. I spoke w/ at dm-1 pt in an eap last week who had the rash and her doc didnt know what it was.
low plats need to be watched , consider dietary support for bone marrow like red meat , greens , fruit incl fresh pineapple, ( we use a corer ) , nuts, and sharks liver oil , chlorophyll from health food store. before they hit 100,000 or lower . a brisk 15 ' walk just before labs can raise them 10,000. L went way below 100,000 but has held steady in 70's mostly, for a long time, w/ dose reduction to 3.0 and w/ diet , and some breaks. in her extension study now, she takes breaks of an extra 1-2 weeks , if plats are below 75,000. others in her study can take breaks too. some pts w/ heavy pre-treatment , and / or bone mets weakening marrow, have had to drop out of eap because of low plats.
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