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Old 08-23-2012, 09:03 AM   #13
michka
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Join Date: Feb 2007
Location: Paris, France
Posts: 858
Re: I couldn't make this up if I tried

"also, see what is in the flushes they give you in your port like heparin and the flush of nacl or whatever they are using as these too can contain alcohol.....they contain something because I can taste it when they inject it"

Sheila, thank you for reporting this. I have a bad taste in my mouth as soon as they flush the port. They always told me it was not possible because it is only NACL and it was just in my head. They told me to think of something else. Of course I knew it was not just in my head but I thought maybe it was the plastic I tasted and I was miserable. Now I know where it could come from AND that I am not the only one who gets that taste right away.
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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