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Hi Chrisy,
Congratulations on graduating DM1 and onto the extended trial. It sounds so promising and offers so much hope to the rest of us.
Regarding the Brain MRI - I am right with you on that after the latest findings. I just had my MRI last month. I go every 6-months so far. I wish you all of the best and NED.
Just in case you get someone like I did for your brain MRI: I went for my brain MRI and I was crazy nervous. I made it through the test and upon leaving the tech looks at me and says "Are you dizzy? Are you sure your aren't dizzy???" Oh, my goodness - Imagine where my thoughts went. Anyway, I got the results stat and have since advised the other techs that they should find another way to see if someone was stable to walk after a brain MRI.
Good luck and good vibes coming your way!
Carolyn
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