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Old 09-25-2011, 04:33 PM   #9
fullofbeans
Senior Member
 
Join Date: Jan 2007
Location: UK
Posts: 617
Re: pain in shoulder blade when I breath deep

I agree with you Elaine. The prob is that now if I asked to see my onco then it would be difficult for him to disagree with the other onco verdict..

All I can do is to never asked to be seen by him again. I saw him once before and also heard from other woman he is sooooo negative. He told me three times when I gave hiom the trial I wanted them to send my info to.. "you know you will not be cured.." three times! He knows I am knowledgeable.. I cannot explain but he gives me the creeps..

Maybe I should ask to be seen again, i know from this board some ladies responded to vino despite being heavily pre treated no??
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
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