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Old 09-25-2012, 10:23 AM   #51
radiant
Senior Member
 
Join Date: Oct 2008
Posts: 88
Re: TDM-1 side effects

Hi everyone!

Thanks for your responses. Michka - I am very grateful to
hear that u had similar s/e's. I was thinking it must be working
to feel this bad, since it's targeted.

I am SO glad to hear this is really working for you. Yesterday
I could get out of bed. Now it feels like bombs went off in
my abdomen area, and that there are holes in some places -
like my liver that my body is working OT to repair. My stomach
area is still swollen and sore. I'm sure thIs means it is
working.

Michka - I saw high bp was a side effect in 10% of folks. I
got bad high bp after being on Avastin for 18 months. I am
now using an essential oil blend to help with my bp - it's working. Plz
PM me if u want to learn more. France is a Mecca for using
essential oils medicinally.

Thanks everyone -

Kim
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Dx Stage 3C 2005, triple +, tons of lymph nodes as well. FEC, surgery, TCH, rads, herceptin 1 year. And, Aromasin.
2007 - recurrence to medistinal lymph node, Abraxene and Herceptin - took it down 50%
2008 - on Arimidex/Herceptin - stable lymph node.
2009 - stable on Arimidex/Herceptin
2010 - lymph node progression and liver mets.
2010 - went on Gemzar, Navelbine, Herceptin - Navelbine and Herceptin took liver mets down. lymph node slightly progressed.
2010 - did Xeloda & Tykerb - MAJOR progression in liver in only 6 weeks.
Dec 2010 - present - Ixempra/Avastin/Herceptin/Fasoldex - regressing
June 2012 - chemo break
Sept 19, 2012 - start t-dm1. Chose this over going back on Ixempra.
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