Holding on to ned...
Jackie, I like the way you think. My onc, who has been my onc since '95, told me that those canser cells that were in my body back then, and in '98, were no longer in there.
He was concerned that I was building up a tolerance to Vit H (after 10 yrs of being on it). He was concerned when I was on it for 5 yrs, but I thought back then that, IF IT ISN'T BROKEN, WHY FIX IT? Well he hit me this time when I was ready, along w/my body, for a break. And, as Flori said BREAKING UP (WITH HERCEPTIN) IS HARD TO DO, BUT YOU CAN ALWAYS GET BACK TOGETHER IF NEED BE, OR IF NED LEAVES YOU.
I have a red rash on my upper arms. Dermatologist says he thinks it is vascular. It came mid H but it hasn't left and I have been off since 7/24/08.
However, I have more energy, have no more hot flashes and way less bathroom drama (though I remain cautious of my *trigger* foods, which took me yrs to figure out).
Please explain your red rash. Mine looks like I just got a bad sunburn. No itching. Kind of fuchsia colored.
Also the Omega 3's Flaxseed Oil, Co Enzyme Q10 and a heap of other supplements are doing exactly as you describe, I have no doubt. I also explicitly tell my body throughout the day what I expect from it. Clear focused Intention and Expectation (as Wayne Dyer suggests) are also key.
Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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