HER2 Support Group Forums - View Single Post - "Living while waiting"

jhandley · 05-17-2009, 12:14 AM

Hi
I have been on herceptin for 3.6 years and have been in remission for all of that (less 9 weeks). I am a bit of a believer in the stem cell model of breast cancer and research shows that herceptin kills stem cells, so after enough Vit H they should all be gone. It then would just be a matter of estimating when that point has been reached, in my case a 15 mm spot on the liver hit with taxol and herceptin; reduced to NED after 9 weeks, and then each herceptin treatment kills a few more stem cells and so on. (I also have 25 g of flaxseed a day which knocks out 70 % of the her 2 receptors and 2 g of DHA and 200 mg of Q10).

So I am working up to ask for a herceptin holiday after the magic 4 years is reached. I am 7 years from original dx. At present I have my treatments 4-6 weeks apart.

(I recently discovered that the mood swings and red rash I have been getting are also from the herceptin so a break would be a good thing.)

Jackie (down under)

05-17-2009, 12:14 AM	#30
jhandley Senior Member Join Date: Sep 2005 Location: Melbourne Victoria Australia Posts: 330	Thinking of having a herceptin holiday myself! Hi I have been on herceptin for 3.6 years and have been in remission for all of that (less 9 weeks). I am a bit of a believer in the stem cell model of breast cancer and research shows that herceptin kills stem cells, so after enough Vit H they should all be gone. It then would just be a matter of estimating when that point has been reached, in my case a 15 mm spot on the liver hit with taxol and herceptin; reduced to NED after 9 weeks, and then each herceptin treatment kills a few more stem cells and so on. (I also have 25 g of flaxseed a day which knocks out 70 % of the her 2 receptors and 2 g of DHA and 200 mg of Q10). So I am working up to ask for a herceptin holiday after the magic 4 years is reached. I am 7 years from original dx. At present I have my treatments 4-6 weeks apart. (I recently discovered that the mood swings and red rash I have been getting are also from the herceptin so a break would be a good thing.) Jackie (down under)