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Re: Just started Tykerb/Xeloda and worried this combo won't work either :-(
Thanks Tonya, Ellie, and Rich. I appreciate the responses. I think I am being a little impatient expecting immediate visual improvement of my IBC. I spoke to someone who noticed changes from day one on Tykerb/Xeloda which made me a bit paranoid.
Ellie- was a second primary breast cancer on the contralateral side considered for you? My contralteral lymph node is ER- as opposed to my ER+ known breast cancer side. My onc at MD Anderson is still treating me as though I have mets even though there is the possibility of bilateral breast cancer. Also, my entire breast is firm and indurated. My breast MRI and PET both show diffuse malignant enhancement. I was nursing at the time of diagnosis and when I weaned the entire thing became firm and hard and has never improved.
Thanks again, everyone!
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Lori, age 33
*IBC (ER+,PR-,Her2+) on right diagnosed 8/09 with metastatic lymph node left axilla (Er-,PR-,Her2+) vs possible bilateral breast cancer
*A/C x4
*Taxol x4 with weekly herceptin
*Breast MRI 12/09- no improvement
*PET scan 12/09- no evidence of mets
*Tykerb/Xeloda 12/09
*Bilateral MRM 4/10
*Twice daily rads to both chest walls and both axillas 5/10-6/10
*9/10 PET/CT- NED
*Tykerb/Xeloda until 12/10
*Tykerb and Tamoxifen 12/10-current. Bye bye Xeloda
*2/11- malignant pleural effusions bilaterally (likely lymphangitic lung mets) and skin mets
Herceptin and Ixempra
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