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Old 10-31-2007, 08:29 AM   #3
Gerri
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Join Date: Oct 2006
Location: Southern California
Posts: 900
Hi Theresa,

I too have weak and achy legs. Sometimes it takes concentrated effort to step up on a curb. I have been off Herceptin for about 8 months. When I was on Taxol I had major neuropathy in my legs and while it did get better, I still have tingling in my feet at times. My legs twitched and jerked while on Herceptin (different symptoms than RLS) but I attribute it to nerve damage from Taxol that was exasperated by Herceptin - just my theory. That too has lessoned but I still experience it on a daily basis. I have to admit that I do not excercise like I should and wonder if that would help. My onc said my theory might be valid. Would love to hear what you find out.

All my best,
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Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
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