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Re: Will you share how you "live your legacy," with me?
Hi Vicky,
I really like how Steph put it about continuing to be a participating member on this site. I have been checking in here almost on a daily basis for more than 9 years now. It has been an integral part of my cancer journey. I have laughed at the "sick" sort of cancer humor that pops up, created so many visual images of all of us through our contributions, and cried when we lose someone all too young. I have met a few women in person...had a nice visit from Tiptoe...
This site puts human faces on an ugly diagnosis. We bare our souls here...cry for help...share our fears...and our joys.
I think my "legacy" as you put it is to share my story with as many people as I can...to insist that my friends and family get mammograms...to educate my kids on what it means to have a mom with BRCA + breast cancer. I live a joyful life, for the most part. When I am having a bad day, I now quickly remind myself that ANY day is a good day and it is up to me to take full advantage of that!
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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