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Old 01-28-2009, 03:38 AM   #1
hermiracles
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Join Date: Oct 2007
Location: Australia
Posts: 309
Is this "remission"??

There seems to be some difference between how terminogy is used in the US and Australia ~ like i dont think people use "NED" a lot here - more often people will say they are "in remission" - I could be wrong here... I have some confusion about the terms myself...!?

The only reason I'm asking is I asked my GP today about my tumour markers It is 29 and apparently it has to be less than 45 to be considered normal - so my tumour markers would be considered normal - which is pretty wonderful eh?

But then he went on to say 'you are in remission'?? This seemed strange to me because on my catscan it still shows some mets there - even though reduced in size and some that have actually disappeared altogether! - but that doesnt equal remission does it?? It obviously cant be NED!... its just I must be a bit confused by the terminology.

What do you folks understand as the differences?

Thanks for your help
Blessings
Hermiracles
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2003 L/DCIS –> LWE: High G./Comedo - 6 nodes clear 6 wks Rx
04/07 2 miracles born ~ very grateful
06/07 Susp areas L/b
09/07 Stage 2 bilat. mastectomy R/ b. clear extens DCIS/IDC Paget’s 8 nodes clear ER(<5%) HER2+++ CT clear
11/07 Portacath - FEC
15/11/07 Stage 4 Emerg op - hip replacemt #NOF bone mets H/Taxotere
12/07 Rx to 'spots' on spine/R/hip/femur 3wkly H
2008 H+T mets to rib/sternum? Aredia CT clear! Cont. H + Aredia 07/08 1 wk Palliative Care - mets to lungs + ?1 to brain
09/08 Stop H complete Epirubicin 1wk PC new brain mets
10/08 2wks WBR 1wk PC 22/10/08 Tykerb/Xeloda 12/08 6 CEREBRAL METS COMPLETELY GONE! Rib mets down to <1cm.
01/09 Tumour markers normal! Rx to L/arm
03/09 LUNGS CLEAR (ALL NODULES GONE!), brain clear, liver clear. Bones stable! ~ THANK YOU GOD
07/09 Repeat CT Scan ~ ALL organs clear apart from bones which remain stable. I walk in gratitude.
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