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Sandy H · 09-14-2006, 10:04 AM

I would like to see a separate message board for IBC however, if it didn't get that much traffic we could do something different. I am always interested in talking to other IBC'ers and looking for those close to me right now there is no one!! There are those that think its not that much different however, my oncologist keeps reminding me this is IBC so we have to stay on top of it with good follow up. This is changing on how it is being treated and with new drugs. hugs, Sandy

09-14-2006, 10:04 AM	#4
Sandy H Senior Member Join Date: Feb 2005 Location: Norridgewock, Maine Posts: 778	I would like to see a separate message board for IBC however, if it didn't get that much traffic we could do something different. I am always interested in talking to other IBC'ers and looking for those close to me right now there is no one!! There are those that think its not that much different however, my oncologist keeps reminding me this is IBC so we have to stay on top of it with good follow up. This is changing on how it is being treated and with new drugs. hugs, Sandy __________________ Dx. 03/01, Rt. IBC AC/Taxatere Rt. MRM-with graft Lt. simple 5 rads-skin mets Herceptin, taxol, carboplatin (taxol seem to be the magic drug) Navelbine & xeloda (did not work) topical miltex for skin mets Tykerb/xeloda thoracentesis x 2 left lung fluid shows cancer cells Port removal (4 years) with power port replacement Doxil Updated 05-07 Scans show no bone or organ involvement we shall see! I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.