HER2 Support Group Forums - View Single Post - ~Too Many Brain Mets To Count~Mighty Oak's Saga Continues...

dchips1 · 06-15-2009, 09:17 PM

I have looked into this for myself if the brain mets continue. I had a port dye check and the Interventional Rad dr that did it reccommend someone in Oregon, he trained under him.
Neuwelt, Edward A.: Oregon Health & Science University - Portland, Oregon

http://www.ohsu.edu/health/meet-our-...r.cfm?id=11097

I have also checked into this through my Gamma/neurosurgeon at Barrows in PHX, AZ, he says it is plausible, they do it with injecting mannitol to open the blood brain barrier. I rescan in 1 week, at the last scan the 1 lesion that I have had gammed twice showed little change. And I as well have had WBR. already. So that is why I have looked into taking hercepitn in that way. Dr Barranco (Barrows) says that the risks are stroke, increased ICP pressure. Good Luck to you and I may not post often But I read and pray and cry with all of my Her2 members. Darita

06-15-2009, 09:17 PM	#84
dchips1 Senior Member Join Date: May 2006 Location: Mesa, Az Posts: 219	Intrathecal Herceptin I have looked into this for myself if the brain mets continue. I had a port dye check and the Interventional Rad dr that did it reccommend someone in Oregon, he trained under him. Neuwelt, Edward A.: Oregon Health & Science University - Portland, Oregon http://www.ohsu.edu/health/meet-our-...r.cfm?id=11097 I have also checked into this through my Gamma/neurosurgeon at Barrows in PHX, AZ, he says it is plausible, they do it with injecting mannitol to open the blood brain barrier. I rescan in 1 week, at the last scan the 1 lesion that I have had gammed twice showed little change. And I as well have had WBR. already. So that is why I have looked into taking hercepitn in that way. Dr Barranco (Barrows) says that the risks are stroke, increased ICP pressure. Good Luck to you and I may not post often But I read and pray and cry with all of my Her2 members. Darita __________________ dx 1/06 IDC 2cm 38 at dx 2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis 3/06-9/06Taxol/Carbo/zometa/Herceptin 3/07 6 brain mets WBR down to c-2 4/07 osteonecrosis jaw 1/08 mri new 9mm lesion right lower side 2/08 gamma knife 1 lesion 11/08 regamma 10/09 latent rad necrosis to brain met, 1/20/10 crani: lesion necrosis w active cells continue her add tykerb 1/11 NED just Ingrown toenail! YEAH GOD 8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans oct -march 11 new neuro deficits lower legs 3/12 2 spinal metsTykerb, Herceptin 04/12 4050cGY rads T 2-4 & T7-9 5/12 Brain,cervical lumbar clear/thoracic slight decrease 10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly. 9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec. last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative. 10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney! 12/13 Mri brain no new lesions, cervical and lumbar arthritis. Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain 1/29/14 HIHO HIHO its off to Neuro surgery I go Life is Good when you wake up in the morning and take a breath and know that God has given me another day.