|
Re: almost 14 years NED breast cancer and apparently it's back in my lungs
Mary Jo Me too. I was totally shocked and plenty ticked off too. lol
Flora You really give me hope. I still haven't received the pathology reports but I'm going to ask the oncologist about three things:
1. Dr. Bell who I posted earlier about. He is right at my hospital so I hope they have lots of info about his research and trials.
2. Oncofocus. I found out that they will do genetic testing of your tumour within 2 weeks and the cost is 3500 Cdn. They sound very organized and offer lots of support to the oncologist and pathologist. I'm going to post some links in case you think this might interest you or others, including the email they sent me with lots of additional information
https://www.oncologica.com/dynamic-c...8&lng=en&ch=fb
https://mail.google.com/mail/u/0/?ui...2bf7e2acf4ea12
They have a live link and offer lots of information. I'm impressed and wonder if I shouldn't just pay for this service. I'll ask this Friday what the oncologist thinks.
3. An Ontario based clinical trial about targeted therapies. Here is the link
https://clinicaltrials.gov/ct2/show/NCT02906943
Flori, I'm thinking of you.
Cathy
__________________
Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
|