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chrisy · 06-09-2007, 07:57 AM

Do not lose heart! I'm no expert in these areas - but I've read that with bone mets, scans actually can get worse initially when the treatments are working. Maybe this is also the case with the pain. Are your treatments weekly? If so, give it a little bit of time but do talk to your onc about this.

I do have experience with liver "pain". In the fine print of the Herceptin literature on all the side effects of Herceptin, one of the possible side effects is "pain at the tumor site". I had no pain from the multiple mets in my liver, but did experience a dull pain there during treatment, which I attributed to the Herceptin. I was on Taxol/Carboplatin/Herceptin and that combination slapped me into remission in 6 cycles.

Taxol and Herceptin is a very powerful and synergistic combination. You've got the big guns out on this, and I hope it will kick the pants off the cancer and you will soon be able to shoutl

MISSION REMISSION ACCOMPLISHED!

06-09-2007, 07:57 AM	#2
chrisy Senior Member Join Date: Sep 2005 Location: Central Coast, CA Posts: 3,207	Do not lose heart! I'm no expert in these areas - but I've read that with bone mets, scans actually can get worse initially when the treatments are working. Maybe this is also the case with the pain. Are your treatments weekly? If so, give it a little bit of time but do talk to your onc about this. I do have experience with liver "pain". In the fine print of the Herceptin literature on all the side effects of Herceptin, one of the possible side effects is "pain at the tumor site". I had no pain from the multiple mets in my liver, but did experience a dull pain there during treatment, which I attributed to the Herceptin. I was on Taxol/Carboplatin/Herceptin and that combination slapped me into remission in 6 cycles. Taxol and Herceptin is a very powerful and synergistic combination. You've got the big guns out on this, and I hope it will kick the pants off the cancer and you will soon be able to shoutl MISSION REMISSION ACCOMPLISHED! __________________ Chris in Scotts Valley June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?" 9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++ 10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response! 04/05 - 4/07 Herception every 3 wks, Continue NED 04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial 06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin 01/08 Progression in liver 02/08 Begin (TDM1) trial 08/08 NED! It's Working! Continue on TDM1 02/09 Continue NED 02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED 12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver 07/11 - 11/11 Herceptin/Xeloda -not working:( 12/11 Begin MM302 Phase I trial - bust:( 03/12 3rd times the charm? AKT trial 5/12 Scan shows reduction! 7/12 More reduction!!!! 8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!) 9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3 11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc 11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go. 2/13 Gemzar/Carbo/Herceptin - no go. 3/13 TACE procedure