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Old 04-03-2015, 12:48 AM   #2
dchips1
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Join Date: May 2006
Location: Mesa, Az
Posts: 219
Re: Back from cyperspace, post IT herceptin

1/29/14 HIHO HIHO its off to Neuro surgery I go
2014
1/29 Thoracic Spine Surgery estrogen trace, HER2 +++
Brown Sequard Syndrome, 4 t-spine titanium screws, dropped blood pressure
1/29 -3/1 Icu
2/1 pm to neuro floor
2/3 off to Neuro Rehab
Right leg sensitive with paralysis, left leg functioning super numb. Shoulders, arms wrists weak and painful
2/18/19 Right lower leg /foot 3-4+++ pitting edema, us/ xray negative for DVT/FRACTURE
2/21 shingles right upper ribs
2/26 dc to home from rehab with supports and loaner wheelchair,
2/27 It and IV Herceptin
3/4 Echo >60& normal otherwise
3/10 PT OT 3x per week Right foot drop
3/19 scoliosis from exam “New”
3/20 grade 4 diarrhea nothing RX natural or diet stopping, bladder incontinent
4/9 300am massive upper right sided pain under ribs, Us normal elevated lipase 111
4/16 hida scan negl still have pain.
4/21 upper back, shoulder pain bilateral, left leg toes regaining feeling, Left leg bruises easily from having to use to propel wheelchair and hitting on chair. Left knee now has more pain than before.
Right leg swells
3x per week OT and PThome
Vision changes big time!
5/14 Lipase elevated
7/14 Right hip muscle fat loss AVN, arthritis/arthrosis in all joints.

7/14 left leg weak sensation toes to pelvic region, Mri shows t-9 lesion growth
8/15-8/215 Cyberknife
Started Perjeta, taxotere weekly IT IV herc
10/14 Mri T spine shrinkage
CBC immature cells,left shift still elevated lipase, neutropenia anemic,
10/28 back pain, Lower disk to the right feels like a marble with pain right hip pelvis, Right knee, wrists bilateral, lumbar thigh edema,Can’t weight bear right leg, foot drop, right thigh muscle loss, left leg numb swelling right greater than left, left leg spasm. Bilateral neuropathy feet,weak, cramps in fingers hands Bilateral shoulder pain from upper lesion. .
2 open tori osteo/radio necrosis lower mandible bilateral
Lots of urinary incontinence, bowels tends to be more on the constipated side.
Tailbone tailbone *2 small decubitus spots
11/19 2 units blood 11/20/14 Herceptin taxotere perjeta
11/20 pacer gait trainer A giant walker with seatbelts and straps
11/20 x-ray pelvis right hip osteopenia
11/21/14 decubitus wound.
12/6 CT pelvis osteoarthrosis bilateral hips, Right with Avascular Necrosis, atrophy muscle
12/9 labs still show immature granulocytes left shift
2015
01 still have bouncing lipase 200-600, right sided abdominal pain.
1/3 right calf swollen and leaking clear fluid.
1/5 echo normal
1/7 Tia symptoms
1/9 3t Brain MRI no new changes
1/10 started Toviaz
01/1 T- spine L-spine MRI growth right side at t-8 right side , t-5 lesion ? lepto? lumbar mild degenerative facet arthrosis hip denervation liver spots too small
1/20 cracked right upper crown 1/21 able to repair
1/26 R lower leg dry and healing. ADD bilat intermittent pressure toes to knee device for home.
1/31 right leg leaking clear fluid again
2/6 New ortho specialist for hip review, AVN right greater than left
2/7 posture support
2/10 Right leg wound check 1 no infection
2/18 sinus infection Rx Augmentin 10 days 875 mg bid
2/20 right calf still swollen, no drainage leg cold to touch, small clot posterior tibial vein no blood thinners stroke risk
3/16 MRI t-spine abnormal curvature, mild degenerative disks T 5 lesion showing up again lepto “? stable . T7-8 grew intradural and intramedullary, lepto “?edema increase edema
U/s sound right calf no change in superficial clot
3/27 weekly IT IV Herceptin, Perjeta Q 3 weeks IV and Taxotere 2 weeks
Labs still show immature granulocytes
Have 3 open tori osteo/radio necrosis lower mandible bilateral
4/2 waiting on last T spine L spine review from Neurosurgeon
Next week meet ENT dr to get Auths for Jaw eval. orders for the hyperbaric tx. Replace tubes in my ears. Ins will pay for jaw, but not for hip AVN At least you go in feet first so, oh darn, everything gets extra oxygen.
Living in the Hurry up, Call again, Wait Department LOL


Life is Good when you wake up in the morning and take a breath and know that God has given me another day.
__________________
dx 1/06 IDC 2cm 38 at dx
2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis
3/06-9/06Taxol/Carbo/zometa/Herceptin
3/07 6 brain mets WBR down to c-2
4/07 osteonecrosis jaw
1/08 mri new 9mm lesion right lower side
2/08 gamma knife 1 lesion 11/08 regamma
10/09 latent rad necrosis to brain met,
1/20/10 crani: lesion necrosis w active cells continue her add tykerb
1/11 NED just Ingrown toenail! YEAH GOD
8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans
oct -march 11 new neuro deficits lower legs
3/12 2 spinal metsTykerb, Herceptin
04/12 4050cGY rads T 2-4 & T7-9
5/12 Brain,cervical lumbar clear/thoracic slight decrease
10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly.
9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec.
last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative.
10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney!
12/13 Mri brain no new lesions, cervical and lumbar arthritis.
Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain

1/29/14 HIHO HIHO its off to Neuro surgery I go





Life is Good when you wake up in the morning and take a breath and know that God has given me another day.


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