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Old 05-03-2007, 09:58 AM   #10
Odette
Senior Member
 
Join Date: Apr 2007
Location: Shaker Heights, Ohio
Posts: 86
Hey Flori,

you have been through so much and you are a tough brave and passionate woman and you will just hang in there until they find a medication that will wipe out all the mets and micromets in your body.
I do also believe that the Xeloda is the one that causes more problems, maybe your doctor can reduce your dose like Lori's was reduced.

From what I hear the Tykerb 1250 mg is pretty much the effective dose.
I hope you have a good day today, when will you next see your doctor?

I promised myself that I will not let this get to me, but I'm quite upset that I am still dealing with the insurance company. (First they said OK to Xeloda, then they revoked it.) Monday my social worker sent in an appeal form, but I cannot get an answer from them. The office that has the info won't even talk to the patient, so I had to call the social worker to call them. And she is out of town etc. Ugh.
Until then I cannot send in my Tykerb Application for Assistance form. Coming to think of it I'll just send it in anyways and if the insurance does cover it I'll just cancel it.

Best wishes to you, hope your weekend goes well. I'm going to a breast cancer retreat Sunday and Monday in Amish Country. There'll be yoga and Taichi.

Your daughter probably has prom and other fun.
I remember it was pretty hard last year to just have been diagnosed and face the end of the year celebrations.

More hugs and prayers,

Odette
__________________
May 18, 2006 Age 52,
Diagnosed infiltrating ductal carcinoma
er/pr- HER2 + 3.9 by FISH
June-August 2006 AC chemo
August-October 2006 Taxotere + Herceptin
November 18, 2006 Mastectomy 16 involved lymph nodes
Jan 2, 2007 start radiation
Stage IV, Jan 12, 2007 recurrence in cervical lymph nodes while on Herceptin, stopped Herceptin
Rad oncologist extended the radiation field, good response
Started Tykerb Xeloda on beginning of May 2007
Progression to lungs and conglomerate lymphadenopathy July 2007
Undecided about next treatment

'One does not get to choose one's adventures'

I'm experimenting with my diet, using green tea, flax seed curry and olive oil

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