HER2 Support Group Forums - View Single Post - Seven (plus) years out from Inflammatory; Four 1/2 w/brain mets....

pattyz · 03-07-2007, 03:31 PM

My treatment consisted of: Surgery first, followed by 4 rnds of A/C. No rads.

The entire bottom half of my right breast was 'orange peel' - I had an additional two tumors, inside upper (3.8cm) and lower (1.9cm) quandrants, plus 6 nodes positive of 26.

Recurrance two plus yrs. later. Mediastinal nodes/spot on lung and pelvis. Brain mets dx'd just two mos. later.

Focalized rads for 16 brain mets in batches over course of 18 mos. Successful to treated areas.

Navelbine/Herceptin put body in NED after a few months. Stopped all treatment.

Third recurrance of brain mets treated with Xeloda/Temodar responding by shrinkage and stable to all new eight lesions. Still under X/T schedule coming up on two yrs.

Still NED in body, (knock wood) four 1/2 yrs out, with active/stable brain mets.

Feeling amazed and grateful,
yours truly, ;o)
pattyz

03-07-2007, 03:31 PM	#1
pattyz Senior Member Join Date: Mar 2006 Posts: 306	Seven (plus) years out from Inflammatory; Four 1/2 w/brain mets.... My treatment consisted of: Surgery first, followed by 4 rnds of A/C. No rads. The entire bottom half of my right breast was 'orange peel' - I had an additional two tumors, inside upper (3.8cm) and lower (1.9cm) quandrants, plus 6 nodes positive of 26. Recurrance two plus yrs. later. Mediastinal nodes/spot on lung and pelvis. Brain mets dx'd just two mos. later. Focalized rads for 16 brain mets in batches over course of 18 mos. Successful to treated areas. Navelbine/Herceptin put body in NED after a few months. Stopped all treatment. Third recurrance of brain mets treated with Xeloda/Temodar responding by shrinkage and stable to all new eight lesions. Still under X/T schedule coming up on two yrs. Still NED in body, (knock wood) four 1/2 yrs out, with active/stable brain mets. Feeling amazed and grateful, yours truly, ;o) pattyz