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Lori R · 02-15-2010, 07:54 AM

Dear Skip,
I believe I posted earlier so I might be a "repeat" success story

I fully know what Florence is dealing with. When I found out that I had a liver met, I called the nurses at my Dr.s in a state of panic. I asked them if the cancer was running rampant through my entire body.

So....that is why we take chemo, kill the circulating cancer cells. If it would provide Florence with reassurance, she can take a circulating tumor cell test that while it isn't widely used supposedly can measure the number of circulating cancer cells.

As you can see from my detailed history, I had one met and have been managing the situation for almost 2 1/2 years. Please remind Florence that during that brief period, the options have increased dramatically. I have many more options in my hip pocket that I am confident will carry me through until the next big break through.

Would florence be willing to come to the site and share her deepest darkest angst? This really is a place where people understand.

Wishing all the best for you and Florence....Hugs....Lori

02-15-2010, 07:54 AM	#3
Lori R Senior Member Join Date: Jan 2008 Location: Evergreen, Colorado Posts: 454	Re: Long term survivors Dear Skip, I believe I posted earlier so I might be a "repeat" success story I fully know what Florence is dealing with. When I found out that I had a liver met, I called the nurses at my Dr.s in a state of panic. I asked them if the cancer was running rampant through my entire body. So....that is why we take chemo, kill the circulating cancer cells. If it would provide Florence with reassurance, she can take a circulating tumor cell test that while it isn't widely used supposedly can measure the number of circulating cancer cells. As you can see from my detailed history, I had one met and have been managing the situation for almost 2 1/2 years. Please remind Florence that during that brief period, the options have increased dramatically. I have many more options in my hip pocket that I am confident will carry me through until the next big break through. Would florence be willing to come to the site and share her deepest darkest angst? This really is a place where people understand. Wishing all the best for you and Florence....Hugs....Lori __________________ 2007 Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008 Feb-Complete 6 cycles- T&H- NED March - Continue - Herceptin Only April - Rads for 6 weeks 2009 Continue Herceptin - Continue NED April - Recurrance- 3 cm. Liver Met May - Cryosurgery June - November - Abraxane + Herceptin Aug - PET/CT - CTC = 0 Back to NED 2010 January - Continue NED July - Recurrance - 3 cm Liver Met CTC=1 August - Cryosurgery #2 August - November Navelbine November - Back to NED - End Navelbine 2011 Feb - Recur - 4 cm Liver Met - Same Left Lobe March Surgery it is -Couldn't get a clean margin July - Confirmed continued liver involvement August - Begin Herceptin + Tykerb October - Mixed results from H+T Add Abraxane + H + T - Nov - April 2012 January PET Scan - It's working!! April - Back to NED July - Recurrance August - Begin TDM-1 Trial (Taxol + TDM-1)