Thread: IBC questions
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Old 10-31-2006, 01:24 PM   #2
Sandy H
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Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
Where this is a trial it is recommended not to take any supplements, over the counter or prescription drugs without checking with the oncologist. He will then have to check the protocal before letting you know. When I had severe diarrhea I had to call him and they got the big book out of 500 pages or more and went to it to find out what they could give me. If it wasn't there then they would have to call the drug company. I hope this helps. Wishing your friend well and she is fortunate to have you for a friend. I have had it for nearly 6 years so if I can help feel free to e-mail me. hugs, Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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