View Single Post
Old 05-04-2011, 11:49 PM   #16
michka
Senior Member
 
michka's Avatar
 
Join Date: Feb 2007
Location: Paris, France
Posts: 858
Re: Update on chrisy - where's NED????

Chris. I am so sorry the met came back. Plenty of things go through my head. I am not sure it helps because it is not an easy time for you but I will share them anyway First of course I am very sad because after 3 years I was hoping you were now safe with TDM1. BUT if you only have one met in the same place, it makes me think that TDM1 protected you in the rest of the body, even the liver. I would first ask the same question as Steph: what does the Pet Scan say? Is the diagnosis sure? Did you also have a MRI of the liver? If it confirmed activity in the same one spot, is it possible to zap it out with first RFA or Cyberknife and then add a targeted combo. But I discovered that it is not always possible because it depends where the met is and that sometimes you have to go for resection. But that is also manageable. But not everybody is convinced to go for "zapping". The size of the tumor is also important. It cannot be too big to zap it out with a not too invasive method Do you know the size? If it is the same stupid met after a long period of three years it seems more positive. Same situation as Lori. Did markers ever show something for you? I figure you would have said so if it was the case.
Chris, I hope you will have all this figured out fast with your next exams. I like the attitude of your onc not to go too fast and conclude. I am sending hugs and I also will keep my fingers crossed. Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
michka is offline   Reply With Quote