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Old 01-30-2014, 10:17 PM   #2
suzan w
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Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
Re: Sentinel node biopsy tomorrow...

I had an injections the day before...in both breasts...of the dye. Sorry to say...rather unpleasant. Breasts felt swollen, quite sensitive. However...next morning I was scheduled for bilateral mastectomy. I had 2 nodes removed from left and 1 from right. Of course...I also had major surgery. The surgery and node removal left me with extreme nerve pain in both armpits. My chest was not very painful...very numb. The armpit pain was unanticipated and quite intense, lasting for weeks. My oncologist told me that this was not unusual. She also told me that nerves are cut while obtaining lymph nodes...depending on how many nodes have to be removed. Even now...8+ years out I have no feeling in either armpit. The feeling in my chest has gradually returned, somewhat.
I can only speak from my own experience...I was not ready to function fully for quite some time.
Not trying to be a bummer here...just an honest answer from someone who has been there. I wish people had been more forthcoming with with me.
I discovered this website soon after my surgery!
__________________
Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!

Last edited by suzan w; 01-30-2014 at 10:17 PM.. Reason: content
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