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Old 01-17-2006, 01:16 PM   #11
AlaskaAngel
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Join Date: Sep 2005
Location: Alaska
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Sheryl, my onc is a general medical onc and not a breast care specialist and when I brought up the issue of PTEN testing, etc. he brushed that off entirely. He has approved Herceptin for me whereas the breast specialist onc I consulted would not. I am listening to the discussion on the main board about testing for various characteristics prior to deciding what to do. I appreciate your suggestion. Although there seems to be no real proof that Herceptin would not work when given farther out from original treatment, is there any real proof that it doesn't help, especially with delayed recurrences? I think it is truly ugly that oncologists have decided they don't care enough to document it one way or the other for us. (I still think they believe most of us died already.) Perhaps they will provide us with a standardized panel of these cancer tests -- but so far all they have done for us is make it harder for us to get traztuzumab OR OncoDx (since that too is recommended for those who haven't yet had treatment). So what are we going to be excluded from next?

AlaskaAngel
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