|
Re: For Reference: Symptoms of brain mets
Cerebellar Tumor Symptoms
These are the soft symptoms I experienced with my cerebellar tumor. They are listed in increasing complexity in case it helps:
- Dizziness (vestibular issue)
- Loss of balance (ataxia)
- Increased pain upon waking, took a while to get used to sitting upright (got progressively worse, caused by cerebral edema)
- Sore neck and shoulder where I never injured them before (pressure on occipital nerve)
- Inability to carry a purse
- Symptoms of occipital and trigeminal neuralgia
- driving pain sensations on right side of head and face
- difficulty walking
- need to keep head in straight, neutral position, started wearing neck brace
- inability to sleep flat on back
- head spins when laying down
- needing to use ice pack on back of head to control pain
- increasing symptoms of pain and nausea
- uncontrollable nausea
- inability to self-care
- loss of appetite
__________________
- Dx 2/14 3b HER2+/HR- left breast, left axilla, internal mammary node (behind breast bone). Neoadjuvant TCHP 3/14-7/2. PCR 8/14 LX and SND. 10/21-12/9 Proton therapy to chest wall.
- Dx 7/20/15 cerebellar met 3.5x5cm HER2+/HR-/GATA3+ 7/23/15 Craniotomy.
- 7/29/15 bone scan clear. 8/3/15 PET clean scan. LINAC SRS (5 fractions) Sept 2015. 9/17/15 CSF NED, 9/24/15 CSF NED, 11/2/15 CSF NED.
- 10/27/15 atypical uptake in right cerebellum - inflammation?
- 12/1/15 Leptomeningeal dx. Starting IT Herceptin.
- 1/16 - 16 fractions of tomotherapy to cerebellum, break of IT Herceptin during rads, resume at 100 mg weekly
- 3/2016 - stable scan
- 5/2016 stable scan
- 7/2016 pseudoprogression?
- 9/2016 more LM, start new chemo protocol and IV therapy treatment with HBOT
- 11/2016 Cyberknife to temporal lobe, HBOT just prior
- 12/2016 - lesions starting to show shrinkage
- 8/2017 - Stable since Dec 2016. Temporal lobe lesion gone.
- Using TCM, naturopathic oncology, physical therapy, chiro, massage, medical qigong, and energetic healing modalities in tandem. Stops at nothing.
- Mother of 2 boys - ages 7 and 10 (8/2017) and a lovely partner with lots to live for.
Last edited by agness; 11-25-2015 at 04:17 PM..
Reason: Typo
|