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Old 12-22-2011, 11:30 AM   #7
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Re: Update on the Journey for NED

Well, well - that neck area just won't give up, will it?

I am wondering if you might be able to get a biopsy to check the pathology of what is going on? Hormone status, etc.

Your doctor was probably at San Antonio and knows all the latest and greatest possibilities for you. Nice to hear your sister is getting to end of her chemo and will be able to "recover" on Herceptin. I hope they will keep a close watch on her for any sign of mets.

Yes, "let hubby do it" should be the order of the day - you have put in your time, and deserve to do only what you feel able to. This is not the time to push your energy, but conserve some for the next go round.

Lots of love and healing thoughts directed right at that stubborn neck area!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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