HER2 Support Group Forums - View Single Post - HER2 Group Busy in San Antonio

StephN · 12-12-2011, 02:07 PM

Hello everyone -

I have a few photos that will give a little idea of our activities at the 2011 San Antonio Breast Cancer Symposium.

Number 1 - Her2 group has pow wow to work on ways to tweak the web site, raise new money, and get input from various perspectives.

Number2 - Chrisy sits among luminaries in the breast cancer world (with Musa Meyer and Dr. Edith Perez on the right). She is on a panel at the Genentech Advocates Briefing answering questions from the patient/advocate viewpoint. We were busting our buttons for her!

Number 3 - End of Advocate's Briefing - Her2's with JoDulay, center, Associate Manager of Genentech Advocacy Relations.

Number 4 - Brenda with her surgeon.

Number 5 - AliceM and Debra Druther intently listen to preview of the results on Pertuzamab trials.

Number 6 - Dr. Hope Rugo closes out the last session speaking about the challenges and successes in treating metastatic breast cancer in year end review. This shows just a tiny part of the really huge room with thousands of chairs. They have about 10 of those Jumbotron screens throughout that hall.

12-12-2011, 02:07 PM	#1
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	HER2 Group Busy in San Antonio - pics, etc. Hello everyone - I have a few photos that will give a little idea of our activities at the 2011 San Antonio Breast Cancer Symposium. Number 1 - Her2 group has pow wow to work on ways to tweak the web site, raise new money, and get input from various perspectives. Number2 - Chrisy sits among luminaries in the breast cancer world (with Musa Meyer and Dr. Edith Perez on the right). She is on a panel at the Genentech Advocates Briefing answering questions from the patient/advocate viewpoint. We were busting our buttons for her! Number 3 - End of Advocate's Briefing - Her2's with JoDulay, center, Associate Manager of Genentech Advocacy Relations. Number 4 - Brenda with her surgeon. Number 5 - AliceM and Debra Druther intently listen to preview of the results on Pertuzamab trials. Number 6 - Dr. Hope Rugo closes out the last session speaking about the challenges and successes in treating metastatic breast cancer in year end review. This shows just a tiny part of the really huge room with thousands of chairs. They have about 10 of those Jumbotron screens throughout that hall. Attached Thumbnails Attached Images __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018. Last edited by StephN; 12-12-2011 at 02:13 PM..