HER2 Support Group Forums - View Single Post - I am on the Vaccine in Washington would like to chat with anyone on same vaccine

Jackie07 · 08-11-2010, 10:47 PM

Lynn and kiwigirl,

I found one of the postings of Margirmc (below) back in late Novemeber 2009. My guess is that she's been enjoying NED and went on with her life. If you click on her name on the Board, you will find all the postings she'd made. There's also her e-mail address if you want to get hold of her. [In case she no longer logs on to this Board]
There are also several 'newly diagnosed' who have reached NED after participating in the Washington vaccine trial. Roll up the Newly Diagnosed postings and you will find them.]

***

Hi, I went back to work, felt good to be in a normal world.
Last Monday was the last vaccine in Washington, got
very emotional about health screening, not just for me but
for my daughter and other young family members.

I just felt - what will they say next, no treatment to later stages?
Got, scared. We all have our own personal faith and political
opinion. And, yes - we do need to keep this post focus on what we all have and are going through her2 breast cancer disease.

It did get political - with government panel guidelines, all over the news, and some like myself had an urge to say something, letting others aware - about possible insurance problems, but there are other places to take action/advocacy groups etc.

There are many organizations that have online petitions, Komen is one of them - that will combat this head on - and that is a good place to vent/or take action that will hopefully show a voice in how a breast cancer survivor feels in front of the political arena.

As for me,
I am doing well, working, cooking, exercising and decorating for the holidays.
Wish all good healthy holidays!

Forgive me, I was scared, tired and emotional.
Margie

dcis
liver met 10 wk treatment TCH
NED
Vaccine

08-11-2010, 10:47 PM	#4
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,808	Re: I am on the Vaccine in Washington would like to chat with anyone on same vaccine Lynn and kiwigirl, I found one of the postings of Margirmc (below) back in late Novemeber 2009. My guess is that she's been enjoying NED and went on with her life. If you click on her name on the Board, you will find all the postings she'd made. There's also her e-mail address if you want to get hold of her. [In case she no longer logs on to this Board] There are also several 'newly diagnosed' who have reached NED after participating in the Washington vaccine trial. Roll up the Newly Diagnosed postings and you will find them.] *** Hi, I went back to work, felt good to be in a normal world. Last Monday was the last vaccine in Washington, got very emotional about health screening, not just for me but for my daughter and other young family members. I just felt - what will they say next, no treatment to later stages? Got, scared. We all have our own personal faith and political opinion. And, yes - we do need to keep this post focus on what we all have and are going through her2 breast cancer disease. It did get political - with government panel guidelines, all over the news, and some like myself had an urge to say something, letting others aware - about possible insurance problems, but there are other places to take action/advocacy groups etc. There are many organizations that have online petitions, Komen is one of them - that will combat this head on - and that is a good place to vent/or take action that will hopefully show a voice in how a breast cancer survivor feels in front of the political arena. As for me, I am doing well, working, cooking, exercising and decorating for the holidays. Wish all good healthy holidays! Forgive me, I was scared, tired and emotional. Margie dcis liver met 10 wk treatment TCH NED Vaccine __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe Last edited by Jackie07; 08-11-2010 at 10:59 PM..