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Old 01-07-2009, 01:41 PM   #8
julierene
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Join Date: Dec 2005
Location: Illinois
Posts: 327
I live in DFW. I just got back from the onc, and my liver mets got a little better, my bone mets got worse, and my tumor marker went up. So he wants to go back on Herceptin/Carboplatin/Taxol. If my insurance will allow it, he is going to substitute the Taxol with Abraxane. That should help with toxicity. Anyway, I don't know how I feel about going back to an old treatment that worked, but if it doesn't help, he wants to go to Avastin + chemo. Any thoughts?

I feel so down right now, I just wanna tell the guy I just started seeing that he would be better off without me. I know that's not right, he's been single too much. But it just doesn't seem fair to him at all.
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Jan04: Bilateral Mastectomy at age 28
Initial DX: Left Breast: IDC 2cm, Grade 3, HER2+3, 0 Nodes +, ER/PR-. Right Breast: Extensive DCIS ER-/PR+; Stage 1-2a
Feb04-Apr04: 4 AC, dose dense
Aug 04: 4 Taxotere
Dec 05: Bone and Liver METS; Stage 4. Carboplatin/Taxol/Herceptin. DX with Li-Fraumeni Syndrome
Apr 06: NED, maintenance Herceptin
Apr 07: CA1503=14; masses in liver; Xeloda/Tykerb
Nov 07: NED, Tykerb maintenance
Sept 08: Liver mets again, on Tykerb/Xeloda again, CA=19 and 27
Nov 08: Progression, Tykerb/Gemzar, CA=25
Dec 08: Progression, Herceptin/Navelbine, CA=40, 57, and 130
Jan 09: Progression in bone, recession in liver, Herceptin/Carbo/Abraxane CA=135
June 09: CA27/29=24, chemo break
Sept 09: Progression, CA=24, waiting on clinical trial (4 weeks no treatment)
Nov 09: now have brain mets, trial "on hold", getting 14 WBR treatments starting 11/2/09
Dec 09: possible start on p53 trial
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