HER2 Support Group Forums - View Single Post

CoolBreeze · 01-23-2012, 02:05 PM

I've seen the same one since the beginning, August 09. He's in a group of others and if I have an emergency when he's not there I might see another, but he is my doctor and he is the one I see each month. He came to see me when I was in the hospital too, which was for c-diff and not cancer, which I thought was nice.

I wouldn't want to switch from doctor to doctor in an oncology situation. When I was pregnant with my 2nd child, the OB practice I went to did this. But, they told me up front and they gave me an appointment with a different doctor each time so I'd meet them all and they all would meet me. That way, by the time the baby came, I would have had a chance to get to know all the doctors. For a delivery, it made sense to me and I accepted that as part of their practice - but for oncology, where your history can get very complicated I wouldn't want to do that. My file is about 9 inches thick right now, no new doctor can read through all that.

What bugs me for you is that they didn't explain that they'd do this and let you choose. You should talk to them and ask if you can have just one doctor. If not, I'd probably find some other practice.

01-23-2012, 02:05 PM	#13
CoolBreeze Senior Member Join Date: Dec 2009 Posts: 562	Re: Just curious I've seen the same one since the beginning, August 09. He's in a group of others and if I have an emergency when he's not there I might see another, but he is my doctor and he is the one I see each month. He came to see me when I was in the hospital too, which was for c-diff and not cancer, which I thought was nice. I wouldn't want to switch from doctor to doctor in an oncology situation. When I was pregnant with my 2nd child, the OB practice I went to did this. But, they told me up front and they gave me an appointment with a different doctor each time so I'd meet them all and they all would meet me. That way, by the time the baby came, I would have had a chance to get to know all the doctors. For a delivery, it made sense to me and I accepted that as part of their practice - but for oncology, where your history can get very complicated I wouldn't want to do that. My file is about 9 inches thick right now, no new doctor can read through all that. What bugs me for you is that they didn't explain that they'd do this and let you choose. You should talk to them and ask if you can have just one doctor. If not, I'd probably find some other practice. __________________ http://butdoctorihatepink.com 08/17/09 Dx'd. Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS HER2+ ER+/PR- Grade 3, Node Negative 10/20/2009: Right mastectomy, reconstruction with TE 12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy 03/31/2010: Finished chemo 05/01/2010: Began tamoxifen, the worst drug ever 11/18/2010: Reconstruction completed 12/02/2010: Finished herceptin 05/21/2011: Liver Mets. Quit Tamoxifen 06/22/2011: Navelbine/Zometa/Herceptin 10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure! 11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years" 03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa 10/10/2012: Progression continues, started Halaven, along with herceptin and zometa. 01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa 03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta. 04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success! 05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo. 06/07/2013: Fiducial placement for SBRT 07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone 07/25/2013: SBRT (gamma knife) begins 08/01/2013: SBRT completed 08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa 06/18/2014: *** NED!!!!*** continuing with Perjeta, Herceptin, Zometa 01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly. 11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted. 5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean. I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.