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chrisy · 04-03-2008, 04:05 PM

Wow Joy, you really have some great doctors! I love that she is really going to bat for you and looking into RFA, questioning the experts for "next steps" after T/X, and especially the strength she (and we) sees in you.

I particularly want you to pay attention to her comments regarding how "you are nowhere near the crisis point you were at a year ago" and that this progression is not life threatening. You are in fantastic health and apparently still quite agile as she feels you can dodge 100 more bullets. As Steph says, I think the good ones really can see what the patient brings to the equation, as well as what the medical community does. And you bring more stength, humor, and joy for life than almost anyone I know.

As for success stories, how about yourself for starters? How many times have you felt like you were at the brink and then stepped way back from the cliff and gone the other direction? I know you don't want to have to change your battle plan again, but I also know you WILL.

As for success stories with liver mets, don't forget Stephanie and Esther, and Irene has slapped down liver mets with RFA more than once.

Hang in there, dear Joy.

Chris

04-03-2008, 04:05 PM	#11
chrisy Senior Member Join Date: Sep 2005 Location: Central Coast, CA Posts: 3,207	Wow Joy, you really have some great doctors! I love that she is really going to bat for you and looking into RFA, questioning the experts for "next steps" after T/X, and especially the strength she (and we) sees in you. I particularly want you to pay attention to her comments regarding how "you are nowhere near the crisis point you were at a year ago" and that this progression is not life threatening. You are in fantastic health and apparently still quite agile as she feels you can dodge 100 more bullets. As Steph says, I think the good ones really can see what the patient brings to the equation, as well as what the medical community does. And you bring more stength, humor, and joy for life than almost anyone I know. As for success stories, how about yourself for starters? How many times have you felt like you were at the brink and then stepped way back from the cliff and gone the other direction? I know you don't want to have to change your battle plan again, but I also know you WILL. As for success stories with liver mets, don't forget Stephanie and Esther, and Irene has slapped down liver mets with RFA more than once. Hang in there, dear Joy. Chris __________________ Chris in Scotts Valley June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?" 9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++ 10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response! 04/05 - 4/07 Herception every 3 wks, Continue NED 04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial 06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin 01/08 Progression in liver 02/08 Begin (TDM1) trial 08/08 NED! It's Working! Continue on TDM1 02/09 Continue NED 02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED 12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver 07/11 - 11/11 Herceptin/Xeloda -not working:( 12/11 Begin MM302 Phase I trial - bust:( 03/12 3rd times the charm? AKT trial 5/12 Scan shows reduction! 7/12 More reduction!!!! 8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!) 9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3 11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc 11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go. 2/13 Gemzar/Carbo/Herceptin - no go. 3/13 TACE procedure