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It is pretty confusing. My original path report was IDC. Then after having a spot biopsied, I was restaged IBC. However, I have been told, not by my onc., that I had skin involvement and that is not the same as IBC. All I know is that I had aggresive tx and I have done what I could to kill the beast. I am very hopeful for IBC recurrence rates to drop with the uses of herceptin and tykerb.
Hugs to all my sisters,
Lexi
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