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Old 03-10-2012, 12:41 PM   #2
BonnieR
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Join Date: Jun 2007
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Re: Question re Lymphedema??

Good question. I only had minimal lymph nodes removed. Sentinal with one or two that came along with it..in both sides.
My left arm has been a little problematic and developed very mild lymphedema. I saw a specialist who recommended the sleeve while flying for that one side only because I had minor symptoms. The precautions regarding avoiding hot tubs, sunburns, cuts, etc is valid for anyone who had had any nodes removed. Blood draws, BP etc should be done on the opposite arm. Since I had a bilateral, we do the labs on my right arm which seems more unaffected.
As an example, my left arm got over exposed to sun and I got to scratching it...anyhow, it got red and swollen, and I needed to take Cipro to prevent cellulitis.
So, it is good to take precautions without getting fanatical about it. Since you are advising patients, I suggest you get factual information from experts too. What does your research show?
Keep the faith.
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Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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