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Re: need some positive vibe -going for PET tomorrow
Thank you so much Ladies. I went to the award, yes it was emotional just to think about my kid and what life will be with or without me. My daughter was stunned and had no clue when they called her name. I think it was because she never pays attention at the assemly. She reluctantly walked up to the stage, got her certificate and still in shock. We thought it was funny when she said" i don't want it " .
I couldn't wait for my surgeon to call and just went straight to the imaging place to pick up my report. And i serioulsy almost had a heart attack when i walked in the lobby. I was so nervous. Maybe herceptin and radiation did do some damage to my heart !
It felt like winning a lottery knowing that the recurrence is only local. The PET scan didn't pick up anything abnormal, including the area that got biopsied and confirmed of cancer. I am seeing my oncologist tomorrow and we will figure out a plan. I am very very thankful that it is only local. A positive way to look at it is that i am given a 2nd chance for cure. Although i haven't had a brain or bone scan, i am just assuming they are both good and i will ask my oncologist tomorrow.
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1/11 age 36 DX
ER/PR-, Her2 +
TCH*6, Herceptin
BMX with immediate recontruction 5/2011 Lattismus Flap- Dx stage 3c 10/23 nodes
9/11 Radiation
3/12 Local recurrence to skin stage IV
Whole body scan CLEAR
4/12 Tykerb & Xeolda Skin mets slowly regressing
8/12 PET & Brain CT Clear
5/13 Skin mets progressing
6/13 PET scan chestwall recurrence in contralateral anxillary,internal mammary and ipsilateral subpectoral nodes
6/13 kadcyla
10/13 whole body scan -clear NED. previously resolved skin rash gone but 3 new lesions. Biopsy confirmed for skin recurrence
11/13 to 02/14 tykerb & herceptin
02/14 add abraxane/gemzar, 2 weeks on 1 week off at reduced dose
05/14 whole body PET clear/ brain CT clear but skin mets are getting worse, ready for new chemo
05/14 navelbine perjeta herceptin
07/14 skin mets progressing red rash worse
08/14 wide local excision with diep flap to close wound. Final path shows 2 positive margins showing inflammatory carcinoma Going back to surgery in 2 weeks
09/01/14 resection- clear margins
3 weeks after 2nd surgery, a new nodular rash found near drain incision with 2 small red spots behind the chest wall biopsy on 10/1. Positive for breast cancer
Radiation 11/2014 with xeloda then weekly cisplatin
11/14 brain MRI clean
12/14 finished 33 radiations burnt and very painful. Bedridden for 1 week
12/14 t current Herceptin and perjeta only
02/15 rash on upper back right side skin mets radiation planned
02/15 staring electron radiation *35
Stopped at 30 due to severe skin burn, resumed 10 days later
05/15 red patches appeared in between previously radiated area, skin mets. Ct and brain Mri clear. Simulation planned, radiation to start after trip to Alaska.
05/24 new spot identified in scar line on previously radiated reconstructed breast- electron on both side chest wall area and scar line
07/15 multiple skin and lung recurrence begin halaven
11/15 cough much better but very tired on halaven and starting to see some new red skin blotches-suspicious
11/15 heading to China for immune therapy
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