Hi, I was never on Tamoxefin, at the time I was premenapausal and not hormone responsive, apparently your status can change but Femara didn't work for me but later Aromasin did, similar but better than Tamoxefin, and used when Tamoxefin failed, I have been treating nodes around neck and skin mets non stop since 1998 and hardly ever stayed NED long enough to stay on these drugs but as the Aromasin shrunk some nodes while waiting for radiation I stayed on it until my onc came up with the brilliant stupid idea to stop it, I have a friend who was on Tamoxefin for 12 months and kept complaining of being short of breath, it wasn't until they did a CT with her laying on her stomach that they found she had clots on the lung from the Tamoxefen then decided to treat her seriously but last I heard they weren't budging. So I am back on the Aromasin but not doing much for spinal chord involvement.
Love & Hugs Lyn
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