View Single Post
Old 01-15-2016, 07:56 AM   #7
agness
Senior Member
 
Join Date: Aug 2014
Location: Seattle, WA
Posts: 285
Re: Boosting Your Immune System - share your ideas

I take UBQH (activated CoQ10) for my heart and brain, though my naturopathic said to take a break during brain rads.

Evidently even chemo will cause heart damage and not just the targeted therapies. I've heard of much high dosages being called for but I take it morning and night.

Recently I heard the story of a grandmother whose heart let out while on a walk with her grandchildren. She had breast csncer treatment many years ago but they attributed the cause to heart damage from chemo years before. Obviously this is an extreme case but since the "standard of care" is to do nothing, it is hard to see the benefit of doing nothing

Maybe we should add CoQ10 as a standard therapy after Herceptin and chemo to our list on the working thread, for our patient manifesto.

Ann
__________________
  • Dx 2/14 3b HER2+/HR- left breast, left axilla, internal mammary node (behind breast bone). Neoadjuvant TCHP 3/14-7/2. PCR 8/14 LX and SND. 10/21-12/9 Proton therapy to chest wall.
  • Dx 7/20/15 cerebellar met 3.5x5cm HER2+/HR-/GATA3+ 7/23/15 Craniotomy.
  • 7/29/15 bone scan clear. 8/3/15 PET clean scan. LINAC SRS (5 fractions) Sept 2015. 9/17/15 CSF NED, 9/24/15 CSF NED, 11/2/15 CSF NED.
  • 10/27/15 atypical uptake in right cerebellum - inflammation?
  • 12/1/15 Leptomeningeal dx. Starting IT Herceptin.
  • 1/16 - 16 fractions of tomotherapy to cerebellum, break of IT Herceptin during rads, resume at 100 mg weekly
  • 3/2016 - stable scan
  • 5/2016 stable scan
  • 7/2016 pseudoprogression?
  • 9/2016 more LM, start new chemo protocol and IV therapy treatment with HBOT
  • 11/2016 Cyberknife to temporal lobe, HBOT just prior
  • 12/2016 - lesions starting to show shrinkage
  • 8/2017 - Stable since Dec 2016. Temporal lobe lesion gone.
  • Using TCM, naturopathic oncology, physical therapy, chiro, massage, medical qigong, and energetic healing modalities in tandem. Stops at nothing.
  • Mother of 2 boys - ages 7 and 10 (8/2017) and a lovely partner with lots to live for.

Last edited by agness; 01-15-2016 at 07:57 AM.. Reason: Typo
agness is offline   Reply With Quote