HER2 Support Group Forums - View Single Post - Scans Clear! Started Rads for Skin Mets Progression

Lolly · 03-23-2008, 03:07 PM

Hi Friends, just wanted to give an update

All my scans came back clear! NO DISEASE in bones, organ or brain! No new areas except MAYBE one new node in the same axilla area we've been fighting for years, and then of course the chest skin mets which are hopefully going to be wiped out by the Death Rays; had my first two treatments Thursday and Friday, and don't really have much to report yet except the mets are a little more "ouchy". I was told it would get worse before it gets better, so I'm settling in for a long haul of inactivity as it makes things more ouchy if I get too ambitious. Frank is spoiling me by waiting on me hand and foot

<3 Lolly

03-23-2008, 03:07 PM	#1
Lolly Senior Member Join Date: Aug 2001 Location: Oregon Posts: 1,756	Scans Clear! Started Rads for Skin Mets Progression Hi Friends, just wanted to give an update All my scans came back clear! NO DISEASE in bones, organ or brain! No new areas except MAYBE one new node in the same axilla area we've been fighting for years, and then of course the chest skin mets which are hopefully going to be wiped out by the Death Rays; had my first two treatments Thursday and Friday, and don't really have much to report yet except the mets are a little more "ouchy". I was told it would get worse before it gets better, so I'm settling in for a long haul of inactivity as it makes things more ouchy if I get too ambitious. Frank is spoiling me by waiting on me hand and foot <3 Lolly __________________ Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation. Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.