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Old 05-06-2013, 10:51 AM   #72
dearjilly
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Join Date: Feb 2012
Location: Ontario, Canada
Posts: 115
Re: NEDenise vs NEDecadron Smackdown!

Andi, I'm glad you looked in to it. I'm happy that I'm taking it, I just hope it's helping!? Not sure as of yet. I'm still on dex, so we'll see when I go off.
Denise, soooo happy to hear that you got the avastin. Let us know how it goes.
Think of you all the time, Jill
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Feb 2013 - NED
Mar 2013 - thought I had progression, watching brain.
April 2013 - GOT MARRIED!!!!
May 2013 - looks like no progression, but necrosis and bigger.
Oct-Dec 2013 - Avastin tx
Nov 2013 - MRI shows necrosis shrinkage!!!!
Jan 2014 - Lepto Mening. disease found
Feb 2014 - WBR
March - BLAHHHH
April 2014 - Liver mets found
April 2014 to present - Chemo again, whooohoo. Fun!
July 2014, scans look good.
Stay on Perjetand hercertin.
Nov. 2014 more lepto-mening disease more WBR.
Feb 2015 more lepto-mening disease in spine and neck. More radiation.
Start on TDM1 no more Perjeta stay on herceptin
March 2015 more radiation in my thoracic area, more lepto-meningial disease
April 2015 trying to walk again.
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