|
Dear sweet Marie,
I am so sorry that you are dealing with yet another round of challenges. I am sending you all the positive energy I can gather to support you as you and Ed "push the envelope" of treatment.
First of all....I am with StephN and others to really confirm that you know what you are dealing with and make no "assumptions". Is open brain inspection an option? I realize quite invasive but at least you'd know.
I thought on the site there was mention of injecting chemo directly into the brain. (I am sorry, this is probably the wrong choice of words but I hope you know what I mean).
Are there any clinical trials that Ed could participate in?
I am with you.....keep on asking the questions, don't accept NO....As so many on this site have already proven, the Drs. don't know all. This cancer has NO IDEA who they are dealing with!! Keep on swinging!!!
Lots of Love....Lori
__________________
2007
Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
|