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Cathya · 01-13-2018, 02:29 PM

Hi all;

I finally saw an oncologist for my ovarian cancer who actually knows about breast cancer. My ca125 numbers have been going up. I had an abdominal CT and it was clear expect I have a gall stone which may be causing it to raise....I pray so. In any case he told me he wants me to get genetically tested again. He said that he is 100% convinced that I am BRCA positive and when I was tested I had only a VUS. He said that testing is much more extensive and better now than even 2 or 3 years ago so referred me back. He said there is a new (or several can't remember) treatment for BRCA+'s now. I have had chemo twice and having additional treatments of it apparently would cause me to be ineligible for clinical trials of these exciting new drugs. I don't know if that applies in the states or just Canada but I thought this might be of interest to some here. Then this past weekend, right after I got home I found a lump on my inner shoulder. I saw my MD who thinks this is either a lymph node or a fat lump but is sending me for an ultrasound this Wednesday. I guess it never really ends.....the fear of recurrence. Take care all. Cathy

01-13-2018, 02:29 PM	#1
Cathya Senior Member Join Date: Sep 2005 Location: Ontario, Canada Posts: 752	New Genetic Testing Hi all; I finally saw an oncologist for my ovarian cancer who actually knows about breast cancer. My ca125 numbers have been going up. I had an abdominal CT and it was clear expect I have a gall stone which may be causing it to raise....I pray so. In any case he told me he wants me to get genetically tested again. He said that he is 100% convinced that I am BRCA positive and when I was tested I had only a VUS. He said that testing is much more extensive and better now than even 2 or 3 years ago so referred me back. He said there is a new (or several can't remember) treatment for BRCA+'s now. I have had chemo twice and having additional treatments of it apparently would cause me to be ineligible for clinical trials of these exciting new drugs. I don't know if that applies in the states or just Canada but I thought this might be of interest to some here. Then this past weekend, right after I got home I found a lump on my inner shoulder. I saw my MD who thinks this is either a lymph node or a fat lump but is sending me for an ultrasound this Wednesday. I guess it never really ends.....the fear of recurrence. Take care all. Cathy __________________ Cathy Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004 Diagnosed Jan. 2005 tumor in supraclavicular node Stage 3c, Grade 3, ER/PR+, Her2++ 4 AC, 4 Taxol, Radiation, Arimidex, Actonel Herceptin for 9 months until Muga dropped and heart enlarged Restarting herceptin weekly after 4 months off Stopped herceptin after four weekly treatments....score dropped to 41 Finished 6 years Arimidex May 2015 diagnosed with ovarian cancer Stage 1C started 6 treatments of carboplatin/taxol Genetic testing show BRCA1 VUS Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady 29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian April 20, 2018 BC mets confirmed, ER/PR+ now Her2- Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these. To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018. Genetic testing of ovarian tumour and this new lung met will take months. To see geneticist to be retested for BRCA this week....still BRCA VUS CA125 has declined from 359 to 12 as of Aug.23/18