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Old 07-22-2013, 06:13 PM   #70
dearjilly
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Join Date: Feb 2012
Location: Ontario, Canada
Posts: 115
Re: SMACKDOWN Victory!

whoops, just saw your post now.....
They just say....sorry, there is nothing we can do, but you can always have hope. I guess perhaps the tumour has cut off the blood supply/nerve. What I have realize about the brain though.....nobody knows. I will still have hope, but yes I am MAJOR frustrated by it. Can't drive, can't focus, yada yada yada....
I have been depressed (poo, I know) so I'm thinking of taking some anti depressants. I guess, since my vision has gotten worse, so have my thoughts. If I get headaches, I worry...if I get dizze, I worry.....you know the routine. I just don't know how to get out of this funk.
I wish I could just be the old Jill again, I don't think that's too much to ask!?!?! Oh, but without the amount of booze that I used to drink!!
Missed you! Jill xo
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Feb 2013 - NED
Mar 2013 - thought I had progression, watching brain.
April 2013 - GOT MARRIED!!!!
May 2013 - looks like no progression, but necrosis and bigger.
Oct-Dec 2013 - Avastin tx
Nov 2013 - MRI shows necrosis shrinkage!!!!
Jan 2014 - Lepto Mening. disease found
Feb 2014 - WBR
March - BLAHHHH
April 2014 - Liver mets found
April 2014 to present - Chemo again, whooohoo. Fun!
July 2014, scans look good.
Stay on Perjetand hercertin.
Nov. 2014 more lepto-mening disease more WBR.
Feb 2015 more lepto-mening disease in spine and neck. More radiation.
Start on TDM1 no more Perjeta stay on herceptin
March 2015 more radiation in my thoracic area, more lepto-meningial disease
April 2015 trying to walk again.
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