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Andrea Barnett Budin · 07-21-2013, 11:18 AM

Losing one's hard work, to have it dissolve in front of you and seep into there stratosphere where only the FBI can relocate it -- is so emotionally depleting! Outrage and exasperation take over my personality... I understand your frustration, on so many levels...

I am glad you are sticking to your guns re treatment options. So proud. The tumor board apparently moves like it's stuck in molasses, but they seem to be coming around to the patient's point of view. You are the ultimate Decider. It's your life, your body, your brain they are all talking about.

I must google nim-null. I love the term, even if you just made it up. In fact, especially if you invented it/coined it. Kind of a numbskull. Dimwit.

I believe in your belief -- that there is no disease there! You're just trying to get rid of radiation necrosis. Your analogy is spot on.

Guess they had to go through all the other possibilities before they became ready to see that Avastin is doing it's job -- and now they must convince the insurance company of its need. And, yes, it is less expensive than surgery, recovery, etc.

If 1 mg of D/day is keeping you balanced, which is key, stick with it till the Avastin finishes its work. You have the rest of your longggggg life to loss the xtra lbs and find some dimples...

We were all just gathering around to get updated. WE are sorry to harass you. But we do love you, Cancer Assasin/chemo Ninja! Oh, and Soul Sister. (And Kate
s t i l l hasn't had that baby...)

The insurance company will come around! I/we have had to fight for lots over the course of the yrs, and in the end, we get what we should have been given to begin with. Tenacity is key. They count on you giving up and going away. So not happening here!

I do remember Flori, Flori, Morning Glory having an altercation with getting Avastin. And she won. Don't you love calling Genentech and "getting their balls rolling"?!!

Always love you, Flori. Always thinking of you. Always impressed with your wisdom, your wit and your tenacity! How you doing out there in La La Land? Your advice is precious. As are you, my old friend.

Denise -- get their balls rolling...

Love to you, and all, as always,

Andi

07-21-2013, 11:18 AM	#66
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	SMACKDOWN Victory! Losing one's hard work, to have it dissolve in front of you and seep into there stratosphere where only the FBI can relocate it -- is so emotionally depleting! Outrage and exasperation take over my personality... I understand your frustration, on so many levels... I am glad you are sticking to your guns re treatment options. So proud. The tumor board apparently moves like it's stuck in molasses, but they seem to be coming around to the patient's point of view. You are the ultimate Decider. It's your life, your body, your brain they are all talking about. I must google nim-null. I love the term, even if you just made it up. In fact, especially if you invented it/coined it. Kind of a numbskull. Dimwit. I believe in your belief -- that there is no disease there! You're just trying to get rid of radiation necrosis. Your analogy is spot on. Guess they had to go through all the other possibilities before they became ready to see that Avastin is doing it's job -- and now they must convince the insurance company of its need. And, yes, it is less expensive than surgery, recovery, etc. If 1 mg of D/day is keeping you balanced, which is key, stick with it till the Avastin finishes its work. You have the rest of your longggggg life to loss the xtra lbs and find some dimples... We were all just gathering around to get updated. WE are sorry to harass you. But we do love you, Cancer Assasin/chemo Ninja! Oh, and Soul Sister. (And Kate s t i l l hasn't had that baby...) The insurance company will come around! I/we have had to fight for lots over the course of the yrs, and in the end, we get what we should have been given to begin with. Tenacity is key. They count on you giving up and going away. So not happening here! I do remember Flori, Flori, Morning Glory having an altercation with getting Avastin. And she won. Don't you love calling Genentech and "getting their balls rolling"?!! Always love you, Flori. Always thinking of you. Always impressed with your wisdom, your wit and your tenacity! How you doing out there in La La Land? Your advice is precious. As are you, my old friend. Denise -- get their balls rolling... Love to you, and all, as always, Andi __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...