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Old 06-18-2007, 12:02 AM   #23
Odette
Senior Member
 
Join Date: Apr 2007
Location: Shaker Heights, Ohio
Posts: 86
Red face Don't mean to nag you...

Hi GemmaG,

It sounds very hard, having two young kids, working and then the crazy tumors are acting up!
Don't mean to nag I'm just wondering were you able to take the lowered dose? There is a great variation how much people are taking. The Tykerb/Xeloda seems to be terrific in holding the mets in check. Hope pray and trust it works for you!

I'm having a hard time taking all my pills... sometimes I end up not taking my vitamins because I get so tired of it.

Hope you feel well, best wishes and stay strong prayers are going your way,

Odette
__________________
May 18, 2006 Age 52,
Diagnosed infiltrating ductal carcinoma
er/pr- HER2 + 3.9 by FISH
June-August 2006 AC chemo
August-October 2006 Taxotere + Herceptin
November 18, 2006 Mastectomy 16 involved lymph nodes
Jan 2, 2007 start radiation
Stage IV, Jan 12, 2007 recurrence in cervical lymph nodes while on Herceptin, stopped Herceptin
Rad oncologist extended the radiation field, good response
Started Tykerb Xeloda on beginning of May 2007
Progression to lungs and conglomerate lymphadenopathy July 2007
Undecided about next treatment

'One does not get to choose one's adventures'

I'm experimenting with my diet, using green tea, flax seed curry and olive oil

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