HER2 Support Group Forums - View Single Post - TDM-1 side effects

michka · 11-23-2012, 05:49 AM

Lori,
For my eyes that also burn they gave me a gel. I have to get up 2 or 3 times during the night to put some in my eyes because they hurt too much.
For the mouth they suggested bicarbonate. It is not a solution for me. It may prevent mouth soars but does not help for he lack of saliva. They also gave me a spray that is better than nothing. I'll look if I can find biotene or something sold here "over the counter".
For the throat, nothing to suggest so I suck unsweetened pills for sore throats when it hurts too much.
For the acne they gave me an antibiotic treatment (pills) although I did not ask for it. They said that if it got worse I would have it handy. I hope it doesn't mean that they know that it is going to be worse....I don't mind being 15 years old again but not that way! It seems to me that nobody except us 2 reported this.

These side effects got worse the last weeks while others are getting much better. How strange. I hope you are doing OK Lori. Any scan coming up?
Michka

11-23-2012, 05:49 AM	#76
michka Senior Member Join Date: Feb 2007 Location: Paris, France Posts: 858	Re: TDM-1 side effects Lori, For my eyes that also burn they gave me a gel. I have to get up 2 or 3 times during the night to put some in my eyes because they hurt too much. For the mouth they suggested bicarbonate. It is not a solution for me. It may prevent mouth soars but does not help for he lack of saliva. They also gave me a spray that is better than nothing. I'll look if I can find biotene or something sold here "over the counter". For the throat, nothing to suggest so I suck unsweetened pills for sore throats when it hurts too much. For the acne they gave me an antibiotic treatment (pills) although I did not ask for it. They said that if it got worse I would have it handy. I hope it doesn't mean that they know that it is going to be worse....I don't mind being 15 years old again but not that way! It seems to me that nobody except us 2 reported this. These side effects got worse the last weeks while others are getting much better. How strange. I hope you are doing OK Lori. Any scan coming up? Michka __________________ 08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20% FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex 12.2010 Mets to liver,Herceptin+Tykerb 03.2011 Liver resection ER+70% PR- 04.2011 Herceptin+Navelbine+750mg Tykerb 06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum 11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin 02.2012 Mets to lungs, nodes, liver 04.2012 TDM1, Ned in 07.2012 04.2015 Stop TDM1/Kadcyla, still Ned, liver problems 04.2016 Liver mets. Back on Kadcyla 08.2016 Kadcyla stopped working. mets to liver lungs bones 09.2016 Biopsy to liver. no more HER2, still ER+ 09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife 01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere 02.2017 30 micro mets to brain breathing getting worse and worse 04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven 06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms