[phil]

so good to hear from you ! so glad you are still getting t dm-1 ! Lorraine is 2 years on t dm-1 this week , doing great ! 28 doses , 21 at 3.0. Lorraines exp access allows one more reduction to 2.4. we are trying to avoid that, as we dont know if theres any cancer lurking. even tho ned for a yr now. plats are L.s issue, about every 4th dose she has to wait 4 weeks for plats to make 75,000, which is new limit in her roll-over study. we would like to get an exception for tx every 4 weeks at 3.0 , but havent asked yet. the plat support we have talked about before seems to definitely help - sharks liver oil, kale , red meat etc. why do you avoid dairy ?? Again , so glad your doing well- appr. is coming soon , when it does we hope to tell our story to the Press , the story of how This FDA botched appr of this amazing drug , we think of our friends who never got achance at t dm -1, like Jay, No Respect for Stage IV Survivors Rights !