HER2 Support Group Forums - View Single Post - TDM-1 side effects

Nancy L · 11-04-2012, 06:43 AM

My tumor markers have stayed the same for eight years and I really would love to understand medically why they believe they work for some and not for others. They still run them every three months even though they don't work for me. I can only conclude it is because they can bill the insurance for it.

It would be very interesting to see which types of mets are responding best to T-DM1. Even better to know why. I have never seen this kind of info for any of the chemos. The only person I know on this site who is similar to me is our dear Sheila and T-DM1 didn't work for her. The only logical explanation for me, if you believe what they say about how the drug works, is that the tumor characteristics have changed regarding her2 or multiple types of BC disease is going on. It is a puzzle I wish they could solve.

11-04-2012, 06:43 AM	#67
Nancy L Senior Member Join Date: Apr 2009 Location: La Quinta, Ca Posts: 253	Re: TDM-1 side effects My tumor markers have stayed the same for eight years and I really would love to understand medically why they believe they work for some and not for others. They still run them every three months even though they don't work for me. I can only conclude it is because they can bill the insurance for it. It would be very interesting to see which types of mets are responding best to T-DM1. Even better to know why. I have never seen this kind of info for any of the chemos. The only person I know on this site who is similar to me is our dear Sheila and T-DM1 didn't work for her. The only logical explanation for me, if you believe what they say about how the drug works, is that the tumor characteristics have changed regarding her2 or multiple types of BC disease is going on. It is a puzzle I wish they could solve.