View Single Post
Old 04-30-2013, 08:37 AM   #3
Andrea Barnett Budin
Senior Member
 
Andrea Barnett Budin's Avatar
 
Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Re: Hot flashes every 5 minutes??!!

You've got a lot going on, Julie.

Yes, I plead yes to breaking in a dripping sweat ev 5 min -- 24/7. Then just clammy. No cool down, as many report. Would love a chill. Did this from my early 40s and continued to about a yr ago. 27 yrs of that -- but no nausea.

Could the nausea be coming from the chemo vs the flashing? For me Phenergan helped enormously, and when I was all out nauseous I took Zofran. That was the late 90s, perhaps they have better drugs for that now. Your onc will know. You should NOT have to suffer from nauseating chemo effects! Other anti-nausea drugs did not work for me. You have to find your perfect match.

I am ER-/PR-. I take 1300 Evening Primrose Oil 2 x a day. And when needed I always carry 500 mg w/me to supplement my supplement! Works within 5-10 min.

The flashing stopped when I went to holistic chiropractor who works with the energy of your body and she manipulated me and gave me a supplement that contained porcine glandular concentrate among other things. I could only get it through her. I took it for a mnth and -- I was cured. Then I stopped cause it messed w/my TSH bld #s. Within a few mnths those #s normalized and I -- remain, amazingly, impossibly, incredibly FLASH FREE.

I sure hope you get a handle on all this!!!!!!! Pronto!

Andi
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
Andrea Barnett Budin is offline   Reply With Quote