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Old 06-25-2007, 06:05 PM   #7
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Oh Flori, I can so relate!

Most days I have moments when I wish it would all go away! One of my "balanced goals" in my business networking group was to keep current on research and treatments without obsessing. Pretty funny, huh! I am grateful for this board because there are so many knowledgable and diligent researchers here (Tom used to call them propellerheads!) that I feel like I can just dip into the well of knowledge. And only obsess a little.

Funny, but taking the Tykerb makes it harder for me to detach from the Stage IV reality. First thing every morning, I open up that bottle and take those 6 bright orange pills and think, "poo". Maybe I'm just anticipating...
But then most days I somehow just go on doing my life. Yes, in retrospect is was a luxury to not think about your mortality every day! Now the luxury is to enjoy and appreciate, really savor every moment of it. Most "normal" people also don't realize how special each minute is. Not that I wouldn't love to just take things for granted again!

Answering the "when will you be done with chemo" question depends for me on who is asking and what they want/need to know. You're right, they just don't get it. I usually say "until it stops working", or sometimes "another 47 years".

Hey, who needs normal, anyhow...
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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