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Re: Please post your two cents on Herceptin "side effects" real or perceived!
A few quotes came to mind as I read your post
"Speak up even if your voice shakes"
"If you're going through Hell, keep going"
And of course " keep the faith"!
Does your treatment center have any sort of patient advocate or oncology social worker who might work with you?
Mine had a pharmacist who prepared the infusions and was available Perhaps you could have a meeting with them to discuss side effects
As you have discovered, the squeaky wheel gets the attention
Thanks for the kind words. I'm just passing on what was given to me here
KTF
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Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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