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Old 05-29-2012, 01:58 PM   #5
Mandamoo
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Join Date: Jul 2011
Location: Melbourne, Australia
Posts: 432
Re: KIWIgirl has earned her wings - so sorry

Oh this is so terribly sad. I am so sorry for her and her little, young family. I always felt for her and her difficulty being in NZ and not always being able to get the treatment she wanted - she tried everything and gave it her all. I was thinking of her yesterday and saw she hadn't lugged on for a couple of weeks...

Oh please, please - we have to find a way to treat brain mets and those with herceptin resistance - the cost for our children and families is too high.

My love and thoughts are with kiwigirl's family at this terribly tragic time. May she rest in
Peace.
Amanda xx
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Amanda xx
40 year old Mum to three gorgeous kids - son 5 and daughters 8 and 11
Wife to my wonderfully supportive husband of 17 years!
22 February 2011 - Diagnosed Early Breast Cancer IDBC Stage2b (ER/PR -ve, Her2+ve +++) - 38 years old
(L) skin sparing mastectomy with tissue expander, axilla clearance (2/14 affected) clear margins.
Fec*3, Taxotere and herceptin*2 - stopped due to secondary diagnosis

June 24 2011 Stage IV - Skin met, axilla node, multiple lung lesions

Bolero3 trial - Navelbine, Hereptin weekly, daily Everolimus/Placebo
February 2012 - July 2012 Tykerb and Xeloda - skin mets resolved, Lungs initially dramatically reduced but growing again
August 2012 (turn 40!) tykerb and herceptin (denied compassionate use of TDM1) while holidaying in Italy!
September 2012 - January 2013 TDM1 as part of the Th3resa trial - lymph nodes resolved, lungs slowly progressing.
January 2013 - herceptin, carboplatin and Perjeta (compassionate access)
April 2013 - Some progression in lungs and lymph nodes - Abraxane, Herceptin and Perjeta
July 2013 - mixed response - dramatic reduction of most lung disease, progression of smaller lung nodules and cervical and hilar nodes - ? Add avastin.
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